I was really pleased to be able to talk with you last night, I absolutely needed it and I enthusiastically welcome the idea of summarizing yesterday’s speech into an email that you can then enter in the forum.
I am 31 years old, in my life I have always been convinced of having a thousand problems, from the idea that I would never find a guy who loved me at the idea of not being physically and psychologically up to a serious partner and many other things. For those things I felt bad, I felt like a nothingness and I thought I had experienced the worst, the most problematic situations of life, then I met a guy and slowly, gradually, we began to love each other. I don’t know what brought us to get together but it happened.
For a long time we couldn’t live together because we didn’t have the chance, in theory we were only two good friends, but in reality we were a couple. We didn’t see each other every day, and it happened that maybe in a week we saw each other only once, but when we were together we felt really well, we learned to love each other, to understand each other, to trust each other.
I thought I had found my serenity and surely he too thought it, but suddenly he started to accuse some disorders, he went to the doctor who sent him to the specialist and he did some very thorough instrumental examinations and it became clear that my boyfriend had a very serious health problem. I don’t go into details, but it was really a bolt from the blue.
At the moment he has quite bearable disturbances, but it will not always be that way and we have been told it, now he has begun his path of illness, which, apart from the gravity of the thing in itself, will create great problems even with work, because he is employee of a large private company and when he will have to go to the hospital for therapy he will be absent from work and so he will risk dismissal. Fortunately for me I have a good job and if it were to serve I could give him a helping hand.
At the moment he has not said anything about the illness to his parents, who are elderly, have a lot of health problems and live with him, he doesn’t want to alarm them, but sooner or later they will realize that something is wrong.
My parents know my boyfriend, who has been to my house many times with them, but they thought he was just a friend of mine. Some time ago, my father, who is 70 years old, looked at me in the eye and said: “I see you’re not quiet, what’s wrong?” And I told him everything, that I was gay and that my boyfriend was sick and he hugged me and told me: “On me and your mother, you can always count and for anything.” I felt a little comforted but I’d have preferred that it was my boyfriend to feel comforted, but he can’t even talk with his parents.
My father asked me about the hospital where my boyfriend goes, and about doctors who take care about him and he said they are serious people, he knows those environments because he too has had oncological problems, now under control.
I modified my working hours to be close to my boyfriend as much as possible, I accompany him to work and I go to take him back, I always accompany him to the hospital, the doctor who takes care about him has been told that we are a couple and didn’t make a grimace. My father at one point called Steven on the phone and Steven came to my house for lunch, it’s something quite usual for us, but this time my father told Steven something that he didn’t expect: “Louis told me everything and we (i.e. he and my mother) thought that you and Louis can feel more at ease enjoying your privacy in this apartment, I and my wife can go to a little house we have in the village nearby, which is only 15 kilometers from here, but your parents would remain alone and maybe they would take it badly, I don’t know … What do you think about?” Steven was puzzled and didn’t know what to say and I too, actually. He should have left his parents’ house and it seemed unrealistic. My father, given the perplexities, didn’t insist and said only: “The proposal is always valid, if you decide to put it into practice, it is done in two days at most”.
When I took Steven back to his house and we parted, he thought that if he had been with me in the same house he would have been calmer, even for the illness, because his parents knew nothing and in case of need they wouldn’t have known what to do. He told me: “I have to try and get my parents to accept it, but they also have my sister and they wouldn’t be alone anyway … let’s see what happens.” After not even a week, my parents went to live in the village and Steven moved to my home. He was happy to be with me, it was also a way to realize a dream, but at the base of everything there was a terrible melancholy. I saw Steven smiling and seemingly quiet but I was worried about the passage of time, everything seemed to me ephemeral and frighteningly unstable.
At the moment the situation is this, Steven goes to the hospital for checks every two months, the doctors don’t talk too much, they decide what to do step by step, I bring inside me a terrible anguish and I think about what Steven is experiencing, we speak about everything, but not about the disease, which means that he is trying to remove it and not to be too much conditioned by it.
I feel embarrassed especially for sex, I swear, Project, I never know how to behave, before we had never had problems, it all came spontaneously, now to launch the idea seems inappropriate, but in the end this is also a stupid problem. He occasionally takes the initiative, we rarely get to sex, in most cases we just smile and move on. It’s different for cuddles, now there’s a lot more tenderness than before, a little to compensate for the decrease in sexuality and mainly, I think, because now we have our intimacy, we have our own home and we can nestle one against the other to see the television or just to feel that we are there and that we love each other.
Project, I would never have thought of having to face a situation like this, which puts me to the test in a violently emotional way. I am terrified of the future, doctors don’t encourage but don’t even discourage, talk about the phase of therapy towards which you are going but never talk about long-term prospects. I don’t ask questions when we go to the hospital together. Steven asks some questions and I try to memorize the doctor’s answers and to put together the pieces of the puzzle to understand something more. We have decided not to read Wikipedia and let the doctors do their work.
Sometimes in the morning I wake up next to Steven and I start to pray for Steven, and I have never been religious, but now I find comfort in the ideas of religion. Of this I cannot talk with Stephen, not so much because he is radically rationalist and unbeliever, but because for him it would be like a further confirmation that I consider his health problem insurmountable. He too, in my opinion, doesn’t see any favorable prospects at all, but he never talks about it. Sometimes, when we hug, I wonder what he is thinking but obviously he doesn’t say anything. Those moments of silence are very intense, our way of shaking hands is already very eloquent. This too is being gay and I had never imagined it.
Now I realize how absurd the problems I had a few years ago were, now I took a bath of reality that put me in touch with human nature in its fragility. I’m learning very hard lessons, I only know that I love Steven, and I will never leave him alone, I don’t want to think of a future without Steven, this idea is terrible for me and makes me cry, because I see Steven who calmly shakes my hand, I hear his voice a little hesitant and I also see him smile, it is he who tries not to make me think and to give me courage.
Now we are at this point, Project, and no one knows what is to come. I feel profoundly melancholic, I feel like a feather carried by the wind. My parents try to be present to calm the atmosphere a little, they treat Steven as if he were a son of theirs, this consoles a little, but the underlying terrible melancholy remains. I love Steven also because he has a dignity even in this situation, and doesn’t close himself in himself, on the contrary he accepts to share his anxieties with me, without too many words but with a lot of love. I stop here, Project, because I can’t go on.
If you like, you can join the discussion on this post on Gay Project Forum: http://gayprojectforum.altervista.org/T-a-gay-couple-in-a-terrible-ordeal